NHS patient data for research - what matters to you?
The SDE is a digital space with technology that controls what researchers can and
can't do with the data (such as copy, change or delete it) within the SDE. Identifying information
will be removed before researchers have access to it, and access will only be granted where
researchers can demonstrate that it will be used to benefit people living in the East of England.
The data that will be used for the research in the SDE will come from people living in, or receiving healthcare in the East of England. We want to know what is important to people when their NHS data is used for research, and hear from them what health problems they would like to see health researchers tackle using the data.
It is also important that we can provide clear information about the choices people in the East of England have about how their data is used. We want to hear from people where and how we can make these choices clear, and how we can help people understand the risks and benefits of opting out.
This survey is anonymous, and only the first two questions are required - please answer as many or as few questions as you like. If you would like to join our public advisory group or receive our newsletter, follow the link to our website below.
